Life with a Rare Disease

Life with a Rare Disease

Living with any chronic health condition can be demanding, but rare diseases bring a unique set of challenges for patients and their carers.
Working Together to Deliver Better Child Health

Working Together to Deliver Better Child Health

Massive improvements have been made to improve child health in the UK, but the challenge ahead is still great as our mortality rate is one of the worst in Europe.
Newborn Screening Preventing Deadly Disorders

Newborn Screening: Preventing Deadly Disorders

Question: Is the UK's newborn screening programme effective?  
Rare Childhood Disorders Adrenoleukodystrophy

Rare Childhood Disorders: Adrenoleukodystrophy

Adrenoleukodystrophy (ALD) is a rare inherited metabolic disorder, with Childhood Onset Cerebral ALD being the most severe; this manifestation affects young boys between the ages of 4 and 10 years.
Baby Safety Building a Safer World For Our Children

Baby Safety: Building a Safer World For Our Children

Safety is paramount for parents when buying for babies, but how can you be sure that you're getting the right product?
Michelle Heaton My Scary Experience with Meningitis

Michelle Heaton: My Scary Experience with Meningitis

British pop singer, television personality and glamour model Michelle Heaton speaks on her son’s encounter with Meningitis.
Rare Diseases Sickle Cell Disease

Rare Diseases: Sickle Cell Disease

John James, Chief Executive of the Sickle Cell Society, explains the sickle cell disease and what needs to be done in the future to treat it.
No Time For Delay on Meningitis B Vaccine

No Time For Delay on Meningitis B Vaccine

Following a year-long campaign by Meningitis Now, the Department of Health announced in March that it will introduce a new Meningitis B vaccine into the childhood immunisation programme.
Building Child Safety Into Busy Lifestyles

Building Child Safety Into Busy Lifestyles

Children under five are at significantly higher risk of death and injury from accidents in the home – building child safety into the home is vital.
Top 10 Accident Prevention Messages

Top 10 Accident Prevention Messages

Here are 10 important messages for preventing child accidents.
Alex and Sam s Story

Alex and Sam's Story

Nine year old twins Alex and Sam Bolton are helping to raise awareness of children’s genetic disorders with the UK children's charity Genetic Disorders UK and their annual fundraising day, Jeans for Genes Day.
Autism diagnosis needs to speed up

Autism diagnosis needs to speed up

The shocking truth of waiting times and healthcare training in relation to diagnosing Autism has been revealed through a survey conducted by Anna Kennedy OBE. The results were highlighted in a meeting with officials at the Department of Health earlier this year.
My battle with meningitis

My battle with meningitis

I’m Jacob Gray, 22, and I lost my legs after Meningitis B and septicaemia almost killed me.
Better care standards will improve quality of life

Better care standards will improve quality of life

Toby, 33 is a Project Manager at the BBC; Lauren, 23 is a Disability Officer for a charity for the homeless; Srin, 28 is a lawyer and tech entrepreneur; Martyn, 31 runs his own business and is changing attitudes to people with disabilities. 
Looking out for the signs of hearing loss

Looking out for the signs of hearing loss

Children can be born with hearing loss –congenital deafness. The vast majority deafness are now identified at or shortly after birth, which has led to greatly improved outcomes.  
Making healthy eating and exercise fun

Making healthy eating and exercise fun

Mentioning the words “nutrition” and “exercise” even to an adult can cause “switch off”, but call them “eating” and “movement” (or even “play”), and there’s a fair chance of some sort of engagement. 
Championing Child Health

Championing Child Health

The UK has one of the best health systems in world and is home to some of the best doctors, nurses and others healthcare professionals.